Nada\u010dn\u00edho fondu Nina<\/a>.<\/p>\r\n[\/perex]<\/p>\r\n
\u201eKoloto\u010d pro Ninu je den, kdy se m\u016f\u017eeme svobodn\u011b sm\u00e1t. Je stra\u0161n\u011b d\u016fle\u017eit\u00e9 potkat se a navzdory v\u0161em t\u011b\u017ekostem si spole\u010dn\u011b u\u017e\u00edt aspo\u0148 ten jeden den,\u201c zve na akci Krist\u00fdna Chovancov\u00e1, zakladatelka Nada\u010dn\u00edho fondu Nina a maminka Niny, hol\u010di\u010dky, kter\u00e1 milovala koloto\u010de, ale podlehla nejz\u00e1ke\u0159n\u011bj\u0161\u00ed form\u011b rakoviny mozku, tzv. DIPG.<\/p>\r\n
Akce se kon\u00e1 d\u00edky p\u0159isp\u011bn\u00ed N\u00e1rodn\u00edho technick\u00e9ho muzea, kter\u00e9 na akci zp\u0159\u00edstup\u0148uje slavn\u00fd historick\u00fd koloto\u010d. Pr\u00e1v\u011b mo\u017enost cel\u00e9 odpoledne bezplatn\u011b jezdit na koloto\u010di je podstatou cel\u00e9 ud\u00e1losti. Doprovodn\u00fd program je ale pln\u00fd dal\u0161\u00edch zaj\u00edmav\u00fdch aktivit, tvo\u0159iv\u00fdch d\u00edlen a stanovi\u0161\u0165 s osv\u011btov\u00fdmi a dal\u0161\u00edmi \u00fakoly pro mal\u00e9 n\u00e1v\u0161t\u011bvn\u00edky.<\/p>\r\n
<\/p>\r\n
Nada\u010dn\u00ed aktivity<\/h3>\r\n
Koloto\u010d pro Ninu je tak\u00e9 p\u0159\u00edle\u017eitost\u00ed informovat podporovatele i n\u00e1hodn\u00e9 kolemjdouc\u00ed o aktivit\u00e1ch Nada\u010dn\u00edho fondu Nina. Mezi n\u011b pat\u0159\u00ed aktivn\u00ed podpora rodin pacient\u016f, aby se dok\u00e1zaly orientovat v nov\u00e9, extr\u00e9mn\u011b n\u00e1ro\u010dn\u00e9 situaci a finan\u010dn\u011b zvl\u00e1dnout l\u00e9\u010dbu a n\u00e1klady s n\u00ed spojen\u00e9. \u201eKdy\u017e pom\u00e1h\u00e1m dal\u0161\u00edm rodi\u010d\u016fm, kte\u0159\u00ed sly\u0161\u00ed tuhle stra\u0161nou diagn\u00f3zu, \u0159\u00edk\u00e1m jim jako prvn\u00ed, \u017ee v\u00edm, jak\u00e9 to je. A \u017ee bych si p\u0159\u00e1la, aby na to nebyli sami,\u201c popisuje Krist\u00fdna Chovancov\u00e1.<\/p>\r\n
Zat\u00edm se rodiny o fondu dozv\u00eddaj\u00ed v\u011bt\u0161inou samy. \u201eByli bychom r\u00e1di, kdybychom se jim dostali do pov\u011bdom\u00ed u\u017e v nemocnic\u00edch. I kdyby nem\u011bli mo\u017enost zkusit l\u00e9\u010dbu v zahrani\u010d\u00ed, m\u016f\u017eeme pomoct \u00fapln\u011b jednodu\u0161e osobn\u00ed podporou, aby na to nikdo nebyl s\u00e1m,\u201c dod\u00e1v\u00e1.<\/p>\r\n
Nadace podporuje tak\u00e9 l\u00e9ka\u0159e a v\u00fdzkum, \u010derstv\u011b v jarn\u00edch m\u011bs\u00edc\u00edch byla ofici\u00e1ln\u011b uzav\u0159ena spolupr\u00e1ce a finan\u010dn\u00ed podpora v\u00fdzkumn\u00e9mu t\u00fdmu Vysok\u00e9 \u0161koly chemicko-technologick\u00e9 zam\u011b\u0159en\u00e9mu na medic\u00ednskou chemii a design l\u00e9k\u016f pod veden\u00edm profesora Andrey Brancaleho. K tomu fond pom\u00e1h\u00e1 l\u00e9ka\u0159\u016fm z\u00edsk\u00e1vat stipendia a st\u00e1\u017ee v zahrani\u010d\u00ed, o \u010dem\u017e bude referovat v\u00fdzkumnice Denisa Olejn\u00edkov\u00e1, kter\u00e1 str\u00e1vila rok na presti\u017en\u00edm pa\u0159\u00ed\u017esk\u00e9m onkologick\u00e9m Institutu Gustava Roussyho.<\/p>\r\n
Leto\u0161n\u00ed akce tak\u00e9 navazuje na lo\u0148skou symbolickou adopci kon\u00edk\u016f z\u00a0Letensk\u00e9ho koloto\u010de, kdy firmy i jednotlivci mohli finan\u010dn\u00edm darem adoptovat konkr\u00e9tn\u00edho kon\u011b. V\u00fdsledkem bylo v\u00edce ne\u017e milion korun na v\u00fdzkum i pomoc zasa\u017een\u00fdm rodin\u00e1m.<\/p>\r\n
Tentokr\u00e1t se koncept vyvinul v digit\u00e1ln\u00ed z\u00e1vod letensk\u00fdch kon\u00ed. Finan\u010dn\u00ed p\u0159\u00edsp\u011bvky mohou b\u00fdt ozna\u010deny jm\u00e9nem konkr\u00e9tn\u00edho kon\u00edka a t\u00edm mu pomohou v z\u00e1vodu. \u010c\u00edm v\u00edc kon\u00edk vybere, t\u00edm d\u00e1l dob\u011bhne. V\u00edt\u011bzem bude ten, kter\u00fd dob\u011bhne nejd\u00e1l. A spole\u010dn\u011b s n\u00edm tak\u00e9 rodiny d\u011bt\u00ed a v\u00fdzkum nemoci, na kterou st\u00e1le neexistuje \u00fa\u010dinn\u00e1 l\u00e9\u010dba.<\/p>\r\n
\r\nP\u0159\u00edb\u011bh, kter\u00fd dal koloto\u010di smysl<\/h3>\r\n
Kdy\u017e man\u017eel\u00e9 Chovancovi kr\u00e1tce po V\u00e1noc\u00edch 2023 usly\u0161eli diagn\u00f3zu DIPG \u2013 difuzn\u00ed intrinsick\u00fd pontinn\u00ed gliom, nejagresivn\u011bj\u0161\u00ed forma n\u00e1doru mozkov\u00e9ho kmene \u2013 za\u010dali okam\u017eit\u011b bojovat. Je\u0161t\u011b za Ninina \u017eivota zalo\u017eili nada\u010dn\u00ed fond, kter\u00fd dostal jej\u00ed jm\u00e9no. Ten m\u011bl nejd\u0159\u00edv pomoct pokr\u00fdt v\u00fddaje na experiment\u00e1ln\u00ed l\u00e9\u010dbu v pa\u0159\u00ed\u017esk\u00e9m Institutu Gustava Roussyho. Sb\u00edrka nakonec vybrala \u010dtrn\u00e1ct milion\u016f korun. Nina ode\u0161la 5. dubna 2024. Ale jej\u00ed p\u0159\u00edb\u011bh neskon\u010dil.<\/p>\r\n
Difuzn\u00ed intrinsick\u00fd pontinn\u00ed gliom pat\u0159\u00ed mezi nejz\u00e1ke\u0159n\u011bj\u0161\u00ed d\u011btsk\u00e9 onkologick\u00e9 diagn\u00f3zy. Postihuje mozkov\u00fd kmen \u2013 m\u00edsto, kde jsou soust\u0159ed\u011bna centra prakticky v\u0161ech z\u00e1kladn\u00edch \u017eivotn\u00edch funkc\u00ed. Chirurgick\u00fd z\u00e1krok nep\u0159ipad\u00e1 v \u00favahu. Chemoterapie dosud nep\u0159inesla z\u00e1sadn\u00ed zlep\u0161en\u00ed. Radioterapie nab\u00edz\u00ed jen do\u010dasnou \u00falevu. P\u0159e\u017eije m\u00e9n\u011b ne\u017e jedno procento pacient\u016f. Pr\u016fm\u011brn\u00e1 d\u00e9lka p\u0159e\u017eit\u00ed od stanoven\u00ed diagn\u00f3zy je m\u00e9n\u011b ne\u017e rok \u2013 a za posledn\u00edch t\u0159icet let se na tom nic nezm\u011bnilo.<\/p>\r\n
P\u0159esto se v\u00fdzkum h\u00fdbe. A pr\u00e1v\u011b jeho financov\u00e1n\u00ed je jedn\u00edm z pil\u00ed\u0159\u016f, na kter\u00fdch Nada\u010dn\u00ed fond Nina stoj\u00ed. Fond je sou\u010d\u00e1st\u00ed DIPG Collaborative \u2013 glob\u00e1ln\u00ed s\u00edt\u011b v\u00edce ne\u017e 25 nadac\u00ed, kter\u00e9 spole\u010dn\u011b financuj\u00ed v\u00fdzkum \u010d\u00e1stkami v \u0159\u00e1du milion\u016f dolar\u016f. V\u011b\u0159\u00ed, \u017ee pr\u016flom v l\u00e9\u010db\u011b DIPG m\u016f\u017ee otev\u0159\u00edt dve\u0159e i u jin\u00fdch typ\u016f rakoviny.<\/p>\r\n
nadace-nina.cz<\/a><\/p>\r\n <\/p>\r\n
Text vy\u0161el v Hobuletu 6\/26.<\/em><\/p>","protected":false},"excerpt":{"rendered":"[perex] Sv\u011btov\u00fd den boje proti n\u00e1dor\u016fm mozku p\u0159ipad\u00e1 na 8. \u010dervna, letos si ho ale m\u016f\u017eeme p\u0159ipomenout o den d\u0159\u00edv. V ned\u011bli 7. \u010dervna 2026 od 13 do 17 hodin se na Letnou u\u017e pot\u0159et\u00ed vr\u00e1t\u00ed Koloto\u010d pro Ninu, benefi\u010dn\u00ed akce Nada\u010dn\u00edho fondu Nina. [\/perex] \u201eKoloto\u010d pro Ninu je den, kdy se m\u016f\u017eeme svobodn\u011b sm\u00e1t. Je stra\u0161n\u011b d\u016fle\u017eit\u00e9 potkat […]","protected":false},"author":251,"featured_media":92389,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":[],"categories":[34],"tags":[117],"_links":{"self":[{"href":"https:\/\/www.praha7.cz\/api\/wp\/v2\/posts\/92388"}],"collection":[{"href":"https:\/\/www.praha7.cz\/api\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.praha7.cz\/api\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.praha7.cz\/api\/wp\/v2\/users\/251"}],"replies":[{"embeddable":true,"href":"https:\/\/www.praha7.cz\/api\/wp\/v2\/comments?post=92388"}],"version-history":[{"count":2,"href":"https:\/\/www.praha7.cz\/api\/wp\/v2\/posts\/92388\/revisions"}],"predecessor-version":[{"id":92391,"href":"https:\/\/www.praha7.cz\/api\/wp\/v2\/posts\/92388\/revisions\/92391"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.praha7.cz\/api\/wp\/v2\/media\/92389"}],"wp:attachment":[{"href":"https:\/\/www.praha7.cz\/api\/wp\/v2\/media?parent=92388"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.praha7.cz\/api\/wp\/v2\/categories?post=92388"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.praha7.cz\/api\/wp\/v2\/tags?post=92388"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}